Judge: Baby Charlie Gard will end life in hospice, not home
- Author: Sylvester Abbott Jul 28, 2017,
Jul 28, 2017, 0:21
But doctors caring for Charlie at Great Ormond Street Hospital in London say it is not practical to provide life-support treatment to Charlie at the couple's home for days.
Charlie's parents announced on Monday an end to their legal battle to keep him alive but went back to court to plead to take him home to die.
Mr Gard and Ms Yates, who are in their 30s and come from Bedfont, west London, had originally asked Mr Justice Francis to rule that Charlie should be allowed to undergo a therapy trial in NY. But the case was back in court on Tuesday as Great Ormond Street and Charlie's parents again found themselves at odds, this time over where he should spend his final hours. Every day, parents with a seriously ill child in intensive care units, emergency rooms and other pediatric care facilities make heart-rending decisions to withdraw life-sustaining technology. "However, he said that "(i) t looks like the chances are small" of the boy being brought home.
The request indicated that the parents had backed away from their earlier expressed wish to take Charlie home for "a few days of tranquility" before his ventilator was disconnected and he was allowed to "slip away".
Charlie Gard has a rare genetic disorder and brain damage.
"It is in Charlie's best interests to be moved to a hospice and for him at that point to be moved to a palliative care regime only".
But they said Charlie's parents were still in dispute with doctors over the detail of care plans. Francis said Charlie's mother and father now accept that the only options for their son "are the hospital or the hospice".
Charlie's parents said, after it became apparent that time had run out for their son, "A whole lot of time has been wasted".
It said: "Please only email if you can help us!"
They also failed to persuade European Court of Human Rights judges to intervene.
Charlie Gard's parents fought for months to transfer him to the United States for an experimental treatment. However, the hospital recently agreed to consider new evidence involving Charlie's condition before taking him off the ventilator.
Michio Hirano, MD, chief of the division of neuromuscular disorders and director of the H. Houston Merritt Clinical Research Center at New York City-based Columbia University Medical Center, traveled to London last week to examine Charlie and determine if he may be a candidate for an experimental treatment. The London children's hospital opposed that, saying it would not help and would cause Charlie suffering.